While probably not applicable in this case, I think many people struck with rare/weird diseases could find this service useful. MetaMed is basically a group of people who are really good at maths, know the newest medical technologies and procedures, and are willing to dig through and evaluate tons of medical papers and publications.
I hope that this will help someone. I'm also interested if anyone on HN used this service and could tell how it worked out in their case.
http://lesswrong.com/lw/gvi/metamed_evidencebased_healthcare...
While probably not applicable in this case, I think many people struck with rare/weird diseases could find this service useful. MetaMed is basically a group of people who are really good at maths, know the newest medical technologies and procedures, and are willing to dig through and evaluate tons of medical papers and publications.
I hope that this will help someone. I'm also interested if anyone on HN used this service and could tell how it worked out in their case.